DES Action USA Staff

Suzanne B. Robotti

Executive Director

Su RobottiSuzanne Robotti founded MedShadow Foundation Inc. in 2012 after two major health issues drove her to become engaged in patient advocacy.

Robotti’s mother, like millions of other women in the 1950s and 1960s took the prescription drug DES (diethylstilbestrol), which was thought to prevent future miscarriages. The drug was widely used despite earlier publication of a study that linked DES to reproductive organ malformation and even cancer. DES was eventually taken off the market in 1971. When Robotti reached childbearing age herself, she discovered she was infertile due to DES exposure. This prompted her to join DES Action, a patient advocacy group.

In 2010, her son’s physician prescribed Ritalin for his ADD, but was unable to explain the medication’s side effects. Robotti was concerned about the long-term effects of this stimulant on her son’s developing brain.

In 2014, MedShadow Foundation acquired DES Action USA, a nonprofit advocacy organization that provides information and educational resources to individuals exposed to the harmful drug diethylstilbestrol (DES).
Email Su Robotti or use our Contact form.

 

Kimberly Bliss

Manager

Kimberly Bliss has worked with non-profits for the past decade, with an emphasis on community engagement and public awareness. Her roles have included Executive Director, Equitable Communities; Teaching Artist Fellow, Community Word Project; Consultant, Marquis Studios, and Network Faculty, National Center for Economic Education, a program of The Council for Economic Education and Associate Director, The Project art gallery. She was named a co-winner in the 2014 Yale Alumni Nonprofit Alliance Social Enterprise Showdown and currently serves on the board of directors of several non-profits. When she is not writing grants for MedShadow Foundation she is writing fiction.

Kimberly earned her Bachelor of Arts degree from Sarah Lawrence College.
Email Kimberly Bliss or use our Contact form.

 

Julie Livingston

Communications

Julie Livingston is a marketing communications and public relations leader with extensive experience in the youth, family and education space. Having worked for nonprofits, trade associations and education marketers, she has provided strategic counsel, garnered major media coverage and served as a national spokesperson. She held senior positions at CarrotNewYork (education marketing), Child’s Play Communications (PR agency), the Toy Industry Association — where she worked on industry crises related to toy safety as well as legislative issues — and Scholastic, where she oversaw community relations initiatives working in partnership with leading nonprofits such as Reading is Fundamental, Volunteers of America and Save the Children, among others.

She serves on the NY Women in Communications Foundation Board of Directors as Co VP Mentoring. Julie holds a BA from CUNY/Queens College and a Masters in Communications Management from Syracuse University’s Newhouse School of Public Communications.
Email Julie Livingston or use our Contact form.

 

Deirdre Wyeth

Executive Producer

Leading MedShadow’s online presence and user experience, Deirdre Wyeth has nearly two decades as a digital strategist. She directs and edits all of MedShadow’s video content, oversees search engine optimization and identifies partnership and alliance opportunities as a means of connecting to a larger audience. Deirdre started working on the web for large media companies in the 1990s, including TV Guide.com, where she was Managing Editor and co-Executive Editor, and Time Inc. where she was an Executive Producer, Interactive, and Director, Site Content and Production at Parenting.com. There, she led her team to winning the MIN Award for Best Interactive Newsletters. Earlier, she was a print editor with TV Guide, Entertainment Weekly and Video Review, where she became the first woman to run a US consumer electronics publication.

A member of the New York Women in Communications (NYWICI) Foundation Board, Deirdre has received numerous industry honors including the New York Women’s Agenda 2014 Galaxy Award and NYWICI 2012 Distinguished Service Award.
Email Deirdre Wyeth or use our Contact form.

 

If you are a member of the media and would like to set up an interview or broadcast appearance with a member of the MedShadow Foundation team, contact Julie Livingston, Director, Communications at julie@desaction.org.


Remembrances

PatCody

Pat Cody – DES Action VOICE Editor (9/14/1923 – 9/30/2010)

We will always remember Pat Cody, DES Mother and co-founder of DES Action USA. She worked as Program Director from 1978 – 2004. Her years there saw passage of Congressional funding for DES research, creation of our quarterly newsletter DES Action VOICE, and assistance in setting up DES groups in the Netherlands, Australia, Canada, France, England and Ireland. But Pat was so much more. She wasn’t the loudest voice in the room but she usually was the wisest. Pat knew how to get things done and you could never say “no” to Pat. She kept DES Action USA on a steady course and her spirit guides us still. Thank you, Pat!


MichaelFreilick

Michael Freilick – Former President (9/16/1953 – 7/6/2011)

Sadly, Michael died of a heart attack – unrelated to DES.

Michael was a health educator by choice. As a DES Son who had surgery for testicular cancer at age 29 he learned that men, and especially young men, need to pay more attention to their health. He wanted to alert them, and spoke out where ever and whenever he could. His message was simple. Start doing testicular exams as a teenager. Michael used his experiences to show how early detection prolonged his life for decades. Michael, and his wife Carol, are the adoptive parents of their daughter, Michelle.

 


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