DES Voices: From Anger to Action
by Pat Cody

DES Voices is the amazing story of the DES tragedy and how a small group of determined individuals accomplished so much with so little. Even now, DES Action USA is considered a model of an effective grassroots consumer organization because of the passion and energy that generated Congressional hearings, followed later with funding for DES research and educational campaigns. This is a story of which we can be proud. Click here for a form to order the book.

Toxic Bodies: Hormone Disruptors and the Legacy of DES

by Nancy Langston

An accurate and compelling account of how the health care industry became enamored with synthetic estrogens and how government regulators failed to protect us from misguided enthusiasm for DES. Langston uses the DES example to show that through the years women's bodies carry the scars of exposures to environmental toxins. Read a review.

DES Daughters: Embodied Knowledge and
the Transformation of Women’s Health Politics
by Susan Bell

This intriguing and scholarly book describes the health movement that is the DES experience. Using personal stories of DES Daughters, Bell describes their reactions to medical care decisions made as knowledge and attitudes evolved over time. The feminist movement coupled with the involvement of organizations, such as DES Action and the DES Cancer Network, ultimately lead to an expansion of research funding, which positively impacted health care treatment options. Learn more.

Our Bodies Ourselves
by The Boston Women’s Health Collective

This highly respected publication provides women with information about health, sexuality and reproduction. The latest edition came out in late 2011 with DES information provided by DES Action USA.

 

Normal At Any Cost: Tall Girls, Short Boys and the Medical Industry's Quest to Manipulate Height

by Christine Cosgrove and Susan Cohen

This book tells the horrible story of drug use to adjust the height of adolescent boys and girls who were threatening to be short, or tall, adults. DES was prescribed to prevent girls from growing "too tall." It got an excellent review in the New York Times and was honored with the prestigious Science in Society Journalism Award from the National Association of Science Writers. Co-author Chris Cosgrove is on the DES Action USA Board of Directors.

 

Rose's Colors: A Mother's Journey
by Elizabeth Levine Wandelmaier

Rose's Colors is the inspiring, true story of how one family came to love and accept their child with multiple disabilities. Rose was born 8 weeks premature to Elizabeth, a DES daughter. Rose's cerebral palsy and other disabilities dramatically altered life for this family. Rose's Colors is the return to a challenging but good life. Elizabeth is former Co-Director of the DES Third Generation Network. To order: go to www.Xlibris.com/bookstore click on "Search" (top right of page) and enter "Rose's Colors" in the title box.

DES Stories: Faces and Voices of People Exposed to Diethylstilbestrol
by Margaret Lee Braun with photographs by Nancy M. Stuart

DES Stories is the first book of photos and stories of DES daughters, mothers, and sons with DES history, research, and resources. In photographic portraits and interviews, DES daughters, mothers, and sons tell, in their own voice, what it's like to be DES-exposed-stories that heal as they reveal. Ordering information is available via Amazon.com.

The Greatest Experiment Ever Performed on Women: Exploding the Estrogen Myth
by Barbara Seaman

For years Seaman's been warning anyone who would listen that drugs like Premarin and Prempro not only do not work - they are dangerous. Seaman's first section, "How Did All This Happen?" is a fascinating study of the history of estrogen promotion, from DES to the pill and HRT, and the growing concern among women about the safety of these drugs. The Second Section, "What Do We Know Now?" describes the aggressive marketing of findings on these drugs. Read this important new book.

My Year of Meats
by Ruth Ozeki.

My Year of Meats is a wonderful, strong, disturbing, funny novel. It is at times hilarious and absurd, at times shocking and heart wrenching. Set in the early 1990's, the novel tells the story of two women, Jane and Akiko, interweaving their lives with Japanese and American culture, filmmaking, the beef industry, and DES. DES daughters will relate to Jane's fears and anger about DES, and many will recognize themselves in Jane's struggle with infertility.

what I thought i knew
by Alice Eve Cohen

This book was listed on Oprah’s 2009 Summer Reading List. It is a familiar story to the DES-exposed, who are no longer surprised by terrible mistakes in health care. But the ones in Cohen’s case were especially horrific. And another life was involved. The book takes readers on a roller coaster ride of emotions through nearly improbable twists and turns of fate – puzzling through the complexities of love, mothering and family relationships.

Our Stolen Future: How We Are Threatening Our Fertility,
Intelligence and Survival – A Scienti (Paperback)
by Theo Colborn, Dianne Dumanoski, John Peter Meyers

Describes the dangers done to humans and their environment by synthetic estrogens, including DES. It is considered the must-read follow up to Rachel Carson’s Silent Spring.

Hormone Deception: How Everyday Foods and Products are Disrupting
Your Hormones – and How to Protect Yourself and Your Family
By D. Lindsey Berkson

The author is a DES Daughter and member of DES Action. Her book describes how to reduce exposures to damaging hormone disruptors found in American homes.

Coming to Term: Uncovering the Truth About Miscarriage
By Jon Cohen

A message of clarity and hope for couples who have suffered multiple pregnancy losses. After his wife lost four pregnancies, science writer, Cohen, gathered information on miscarriage, a topic shrouded in myth and mystery. He has provided a revealing an inspiring book for women who have lost at least one pregnancy – and for her partner, family and close friends.

Get Me Out: A History of Childbirth from the Garden of Eden to the Sperm Bank
By Randi Hutter Epstein

How childbirth has been regarded down the ages: a mystery, a center of religious theory, and a goal achieved despite quack methods. One chapter deals with DES and how use of the drug forced women to be more active participants in their own health care.