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Information for Health Care Providers

On October 6, 2011 the New England Journal of Medicine published an article listing the Adverse Health Impacts for DES Daughters based on results of research from the National Cancer Institute DES Follow-up Study. According to lead author Robert N. Hoover, M.D., Sc.D., of the National Cancer Institute DES Follow-up Study, researchers can say conclusively that prenatal DES exposure is linked to twelve adverse health problems for DES Daughters. They are: *infertility, *spontaneous abortion, *ectopic pregnancy, *second trimester pregnancy loss, *preeclampsia, *preterm birth, *stillbirth, * neonatal death, *natural menopause prior to the age of 45, *cervical intraepithelial neoplasia grade 2 or higher (CIN2+), *breast cancer afer age 4, *clear cell adenocarcinoma of the vagina and cervix.


DES Action USA has been serving the DES-exposed community since 1978 and welcomes health care providers who give services to DES-exposed individuals. Contact us to inquire about being named on our USA Physician List.

We urge health care providers to include a question on patient intake forms about DES exposure. It is part of an individual’s health history and has consequences for care. Specifically, according to the CDC, DES Daughters require a special gynecological exam every year. Click for directions on how to conduct it: Annual Pap/Pelvic Exam The exam is similar to a routine one but is more comprehensive, focusing on the vagina. The annual Pap/pelvic is still needed even after a hysterectomy - to check for vaginal cancer. A yearly screening is important, even according to recent guidelines from the US Preventative Services Task Force (USPSTF) which clearly spell out that while unexposed women can skip years between Paps, the GUIDELINES do NOT apply to DES Daughters who need more frequent screening! See the second sentence in the Recommendations section where that is clearly spelled out.


Upon reaching the age of 40 DES Daughters should have yearly breast screnings and clinical breast exams because they are nearly two times as likely as unexposed women to get breast cancer. Click here for the Journal article on this research, which is also included in the New England Journal of Medicine (10/6/11) article.


We would be happy to send your health care office, or clinic, DES informational brochures to share with your patients. Contact us with your name and mailing address.

DES Action USA is here to help, and can provide your exposed patients with valuable information they cannot get anywhere else. Please refer them to DES Action USA.

The Centers for Disease Control and Prevention (CDC) created a DES web site at which included a link "For Health Care Providers" This is an important resource; however, it has not been updated with the recently identified breast cancer risk for DES Daughters. Read the journal article published in Cancer Epidemiology Biomarkers and Prevention. Also, the CDC site has not been updated with the latest on new studies pointing to the strong possibility that DES Grandchildren, the third generation, may have been affected by DES.


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