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 Membership DES Daughters DES Grandmothers DES Sons Endocrine Disruptors

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DES Action USA is the only national organization for all individuals exposed to DES, their families and their health care providers.DES Action has been successfully serving the DES-exposed community since 1978.


Free Packet of DES Information
If you would like information regarding DES we are happy to mail or email it to you. Let us know if your interest in information regarding DES Mothers, Daughters, Sons, and/or Grandchildren.

We will include general information about DES health consequences and recommended screenings and directions for doctors on how to do a proper DES Daughter Pap/pelvic exam. Also included will be a membership form.

When you join our organization (and support our work) we’ll send a comprehensive packet about DES, including a Physician Referral list for DES Daughters (we have referrals for DES Sons but they are scarce and mostly in urban areas), along with recent DES Action VOICE newsletters.

We are not able to provide:

  • Financial assistance in paying for health care or insurance
  • Lists of attorneys (We do not know of any attorneys currently working on DES lawsuits. If you know of any, please let us know.)

Contact us by phone:
Toll-Free: 800-DES-9288 (1-800-337-9288)

Contact us by mail: 

DES Action USA
178 Columbus Avenue
New York, NY 10023

Tell us what information you would like and provide your name and mailing address so we can send it right out to you. (We respect your privacy and will not give your contact information to any other group or individual.)

Contact us by email at

Media Inqiuries

Looking for information about DES (diethylstilbestrol) and DES Action USA advocacy efforts?
Please contact Julie Livingston, Director of Communications, DES Action USA,, (347) 239-0249