The mission of DES Action USA is to identify, educate, empower and advocate for DES-exposed individuals.

We’ve joined the annual global #GivingTuesday fundraising campaign on 12/1/15 for nonprofits. We’re calling our program #GivingDuesDay. More than 10% of DES Action members either can’t pay the dues or pay a reduced amount. Some are DES Moms on a limited income, some are students with too many financial claims, some have DES-related health bills and challlenges. So, we’re reaching out to our networks, and hope you will reach out to your network, to contribute $40 to subsidize 1 membership, $80 for 2 memberships. Donations can be made here — please share this link with family, friends and coworkers:

Many thanks for all the donations that keep DES Action serving 3 generations DES families.

About DES

DES Action president Su Robotti talks about DES. (1:04 min.)

Diethylstilbestrol (DES) was the first synthetic estrogen to be created. Never patented, it was cheap and easy to produce, so DES was made by hundreds of drug companies in the U.S. and around the world. DES was prescribed to millions of pregnant women in the mistaken belief that it could prevent miscarriage. It did not work but instead, DES harmed the mothers, the children born of those pregnancies and possibly the grandchildren and beyond.

Prenatal DES exposure is associated with reproductive cancers (including breast cancer), infertility, and structural changes of the reproductive tract. Research is continuing with new adverse health impacts being identified. The DES experience is a true medical tragedy brought on by less than adequate drug testing, heavy promotion by pharmaceutical companies bent on making a profit and lax government regulation.  While DES is no longer prescribed for human use, those who were exposed to this endocrine disrupting drug are left dealing with the health and emotional consequences it caused.

Read more about DES

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